Thursday, May 19, 2011

Finding Ways To Help Others

This week, it is your turn.  In an effort to service the area of Western Kentucky, I am finding many parents with children with special needs or epilepsy who are in need of services.  This week if you are a parent of a child with epilepsy, or if you or another family member have epilepsy, I'd like for you to post your experiences.  Let me know the following:

1.  Are you happy with your current health care provider?

2. Are you seizure free?

3.  Are you serviced well in your community, if yes, what services are the most valuable to you?

4.  What resources do you need?

5.  What additional supports would be helpful to you?

I know personally that navigating insurance, health care, medications, pharmacies, educational supports, therapies and resources is overwhelming.  Finding a way to pull together the services needed and share those with families in need is my goal. 

If you are not effected by Epilepsy, think about the opportunities that exist in helping a family that is dealing with this.  Offer to run errands, cook meals, go over and fold their laundry, send them cards that let them know you are available to help in any capacity.  Even one small effort on your part can be a huge blessing in the day of a deserving family.



Monday, May 9, 2011

First Aid For Seizures

Seeing a person have a seizure can be traumatic, and then again, some seizures look like typical behavior if the person having the seizure has another underlying developmental disorder.  I hope you never have to experience seeing someone seize.  However, being prepared makes all the difference.  Last week my article was "Do You Know What a Seizure Looks Like?"  Read through it and make yourself aware of what the different kinds of seizures look like.  My response to those who might ask "how do I know if it's really a seizure?" is to treat it as though it is, because if you suspect it is a seizure- it is likely that it is in fact- A SEIZURE. 
There are simple steps for Seizure First Aid for any kind of seizure:

  1. Make sure the person is in a safe area, if not, guide them gently to a safe place: away from objects, people, or danger.
  2. Do not hold them down.
  3. Do not place anything in their mouth.
  4. Reassure them and talk quietly.
  5. Time the seizure.
These additional steps apply to someone having a generalized seizure:
  1. Cushion their head.
  2. Lie them on their side.
  3. Look for medical ID
Reasons to call for an ambulance:

  1. A seizure that lasts longer than 5 minutes, or reoccuring seizures.
  2. No Epilepsy ID
  3. Slow to recover, confused or experiencing difficulty breathing
  4. Pregnancy or other medical condition
  5. Illness or Injury
There are many sites that give information, however there are posters from the Epilepsy Foundation that are very appropriate for the general population and are easy enough for children to even understand. 

There are some caregivers who are experienced to give emergency first aid medications to a patient who experiences prolonged seizures.  If you know someone who has Epilepsy and has breakthrough seizures, it is helpful for you to recieve training on administering DiaStat (rectal valium) if prescribed to the patient.

Our Caleb experienced a seizure at school one day, and before I could get to him, his teacher, whom I had trained in giving the DiaStat was able to administer it and it temporarily stopped his seizures.  There is a great deal of thanks I have to that teacher, who during a very difficult time for him, was able to help his seizure cease.  That alone is a blessing to a person experiencing a prolonged seizure.  Our Caleb continued to have breakthrough seizures that day, and was hospitalized.  However, many times, this procedure could stop a seizure all together to prevent a person from having to endure an ER visit. 

The overall goal if for persons with Epilepsy to have the best quality of life possible.  If you know first aid for seizures, you will be calm if ever faced with helping someone through a seizure.  You can be a blessing to another.

With Hope,

Monday, May 2, 2011

Do you Know What A Seizure Looks Like??

Have you ever witnessed a seizure? Some can be scary, others are totally unnoticeable.  There are almost 3 million people with epilepsy, and  10% of Americans will experience a seizure in their lifetime. Click here for :  Epilepsy Foundation Statistics

There are two groups of seizure types: Generalized (grand mal) which simply means effecting all of the brain; and Partial seizures which simply effects a small area of the brain. However, Complex Partial Seizures can lead to Generalized seizures.

Our Caleb had many types of seizures.  He experienced: Absence seizures, Complex Absence Seizures, Atypical Absence Seizures, Myoclonic, Tonic, Clonic, Tonic-Clonic, Partial Seizures, Complex Partial and Frontal Lobe Seizures.  There are also Atonic seizures. These all vary in appearance.  Knowing what these look like can enable you to spot someone having a seizure and allow you to help them. 


Absence Seizures- Individual blanks out and stares.  Usually does not remember the seizure, and returns to normal awareness after the seizure. Typically last less than 20 seconds.

Complex Absence Seizure- Change in muscle activity, could be rigid or relaxed.  May have rapid eye blinking. May make tasting movement of the mouth.  May rub fingers together "pinching". Can last over 20 seconds.

Atypical Absence Seizures- These are particularly hard to identify in that the person can be somewhat responsive, can manipulate objects, but are not "with you".  They stare off, may have eye blinking and may make tasting movements with their mouth.  These may not look like abnormal behavior, especially in children with developmental delay.

Myoclonic Seizures- These are brief jerks typically involving both sides of the body in a rapid muscle contraction and relaxation.  Typical areas of movement are in the arms, shoulders, neck and face.  However, there are syndromes in which myoclonic seizures will precipitate Tonic-Clonic seizures.  Caleb experienced this combination of seizures daily.

Tonic Seizures- These are a generalized seizure where there is complete flexion and stiffening of every muscle in the body.  The arms will raise above the torso, sometimes completly over the head.  Some times the contraction of the muscles push air out of the lungs with a distinct noise. If a child is awake when these occur they will fall. These usually last 20 seconds or less, however, they can last up to a minute.

Clonic Seizures- These are rhythmic movement sometimes on both sides of the body in which the muscles are contracting and relaxing that it appears in a jerking motion.  The length of these seizures vary.

Tonic-Clonic Seizures- These begin with the Tonic seizure, where the body stiffens, followed by the Clonic seizure with rapid jerking.  These seizures can last 1 to 3 minutes.

Atonic Seizures- These seizures are the opposite so to say of a tonic seizure.  Instead of flexion, there is loss of muscle tone and the person may have their head to fall over, eyelids droop and if standing, they may fall to the ground.  These are known as "drop attacks".  The end result looks similar to a tonic seizure, so it is important to observe what is happening before the fall to be able to distinguish what type of seizure is taking place.  These usually last around 15 to 20 seconds.


Simple Partial seizures- These vary from person to person. 

  • Motor Seizure, as a jerking or stiffening of a hand, finger, or foot.  They may become weak on one side, or laugh. 
  • Sensory Seizures, where tastes, smells, visual illusions and sounds may appear that are not present. They may have pain or feel as though they are spinning.
  • Autonomic Seizures which is a change in the nervous system that automatically controls body function.  Symptoms can include changes in  heart rate, breathing, sweating, discomfort in the chest, head or stomach.
  • Psychic Seizures:  These seizures change how people think, feel, or experience things. They may have problems with memory, or speech. They may suddenly feel emotions like fear, depression, or happiness without provocation.
Complex Partial Seizures-These seizures start either in the temporal lobe or frontal lobe of the brain.
  • Temporal Lobe seizures- Alertness and awareness are changed, as with absence seizures, they can pick at their clothes in a pinching motion or have an "aura" or sense that the seizure is about to occur.  Sometimes, they may scream or cry or have odd behavior.  They can have memory lapses because of the seizure. The seizure can last up to 2 minutes.
  • Frontal Lobe seizures- These seizures are difficult to diagnose, as many would attribute this to a psychiatric event: HOWEVER, THEY ARE NOT.  Sometimes these occur in sleep, with Caleb, we saw them while he was awake.  Symptoms of the seizure include:
    • Head and eye movement up and to one side.
    • Complete or partial unresponsiveness.
    • Explosive screams or laughter.
    • Abnormal body posturing, such as one arm extending while the other flexes.
    • Repetitive movements, such as rocking or bicycle pedaling.
    • If awake, may run frantically afterward.
Knowing what a seizure looks like is important.  Next the question is, when you see someone have a seizure, what do you do.  I will cover this question in my blog next week. 

People who have epilepsy need your support, encouragement and love.  Make sure that you enable them as much as possible to do everything they can do and help them to be successful.  One person can make a difference in the life of another, be that person.